Last time I posted a video of E-bug talking, the post got rave reviews. So...we decided to try again tonight. You can tell he has learned to act out during his interview. He does find Daddy (or Papa as we are trying since Daddy sounds like Debbie and Teddy) in the window and gets quite distracted. He is such a joy (see below).
On another note....
-I ate 3 meals today and only took 1 nap. I think I am turning the corner.
-I made gluten free pancakes this morning and they were ok (as are most things). Andy didn't seem huge on them, again they had a corn bread texture. I added a few blueberries and was able to eat 2 of them. Andy bought my favorite snack "cheese-it's" and put them in HIS cupboard. The guts that guy has! I also walked past the food court at my 1 hour outing today. I won't be eating at any of those places in the future-so I'm hopeful to lose a few pounds.
-Andy bought a frozen pizza last night for his dinner. He knew I'd go to bed early and he generously waited until I was upstairs before he baked it. I had Vick's vapor rub on my chest and it was so strong I felt as if I was eating it. He enjoyed tormenting me with that. Then he skipped downstairs and enjoyed his delicious bubbling pizza while I breathed in menthol all night. (Pretty darn nice of him if you ask me-since frozen pizza would have made me want to "cheat").
-I am dreaming of my new niece, Sydney. She is just gorgeous in all the pictures her mama posts. Sounds like things are running smoothly in the house of 5~ just wish I could get out for a visit. I need to get rid of alllll of my cooties before visiting.
Enjoy the video.
Saturday, January 29, 2011
Wednesday, January 26, 2011
Culpable
(Spanish for guilty, or to blame)
Being sick is hard enough. Isn't it? When your really sick all the different symptoms bog you down and you exist as if you're taking your last breath. You know you'll never feel good again. Every time I'm sick I feel as if I can't remember what "normal" is like.
And then you have to call in sick to work. You have to tell your trusted co-workers "I won't be in" (oh and "please do all my work for me?"). Uggggggggggggg the guilt. It's a really uncomfortable thing for me. I always feel like people will think I'm lying, exaturating lazy. This time I wracked my brain for what I thought people might hypothesize.
-Is she hung over from watching the Packer game on Sunday? (I did watch, but could hardly cheer or get off the couch)
-Did she go visit her new niece in Minnesota? (Man do I wish I had that opportunity-there is NO way I would put my germies out there for that little darling!)
-Why did she come back to work on Tuesday, just to be off on Wednesday again? (The RN told me if there was no fever, I could work. BIG mistake).
Today I feel worse.
But what is almost worse (ALMOST) is the feeling of guilt I have that I didn't get that darn flu shot. Thankfully Eli and Andy both got one and have not shown any signs of sickness since I started feeling it last Friday. I know my boss and co-workers are probably disappointed in me. I have an 18 month at home for goodness sake and I work with an immune-compromised population. How could I have NOT gotten the flu shot?
Well...you want excuses-here they are.
1. I hate shots. That's the first reason that I didn't and haven't ever gotten the flu shot. I never have gotten one.
2. I have never had the flu. Well THAT came back to bite me in the butt didn't it?
3. All fall I was battling stomach aches and gi distress that made me worry I had colon cancer. Turned out to just be Celiac disease and getting diagnosed with that consumed me.
Those are my excuses. I know I know-making excuses doesn't fix anything. But I think I have the right to defend myself (only a little bit) and let you all know that I have learned from my mistake.
This flu that I had, which may or may not be turning into pneumonia, has me feeling like I am on my deathbed. I wish this upon nobody at any time.
I have been in bed since last Friday and will probably be here until this Friday. I have missed my little Eli hugs and kisses. I can hardly eat anything and all the gluten free stuff just doesn't do the trick for me. I've had fevers, trips to the bathroom, coughing fits and even 1 night of hallucination (Thank goodness Andy was able to come up to calm me).
Don't feel sorry for me. It's my fault.
Come on people, tar and feather me.
Next year...I'll be the first in line for that dang shot.
Sunday, January 23, 2011
Any Given Sunday
Today I got a call from the doctors office to tell me that my influenza swab came back positive. What's with me and positive results? geepers. Now I have to wait for them to determine which strain I have before they can decide if I should be treated or when I can go back to work...I've actually been feeling like I can't get off the couch.
But! It's not any regular Sunday that you get news as special as a brand new baby niece. I'm extremely excited about the new lil one who met her mommy, daddy and 2 amazing older brothers today. I can't wait to give her a squeeze.
Also, it's not just ANY ol' Sunday that the Packer's win and make it into the Superbowl.
It's a good Sunday.
But! It's not any regular Sunday that you get news as special as a brand new baby niece. I'm extremely excited about the new lil one who met her mommy, daddy and 2 amazing older brothers today. I can't wait to give her a squeeze.
Also, it's not just ANY ol' Sunday that the Packer's win and make it into the Superbowl.
It's a good Sunday.
Thursday, January 20, 2011
Every little thing she does is magic....
I have this friend.
This first friend.
This trendy friend.
This hilarious friend.
This-always-there-for-a good -vent friend.
She's more than a friend; she's a gal, a sister, a cousin, a daughter, a doctor, a bridesmaid (oh and a beautiful bride), a wife, and a mother (and many other things).
This friend of mine is amazing. Although we have never lived in the same state since we were 3 years old, we have bucket loads of memories. I can't list them all but I can tell you that
-we have laughed as if we were out of control as our feet were stuck in the mud while shoving pop rocks in our mouth
-she let me go to school with her for a full day in 8th grade
-we bought our pens after looking (and laughing) at them year after year
-we traveled to New Mexico together, enjoyed blue speckled cups, chased the icecream truck barefoot, and scavenged through a freezer
-we wrote long letters to each other monthly through the years that we both lived at home
-we stood up in each others weddings, helped with showers and enjoyed each other's bachelorette parties
-we share stories of being moms of little boys
-we've been left at bars
-we've gotten stuck in paddle boats in the middle of a lake
-we read the same books
and the list goes on and on.....
When Eli was nearing 1 year old, I got an e-mail from her that made me feel so good. She told me that it is normal for people who have gone through something traumatic or emotional to feel that same way 1 year later and that it was ok for me to have some of those same emotions. In the last year I have found her to be one of the people in my life that can say the right thing at every important and intense moment. When I see an email pop up from her I know I will be validated for any concerns I had written to her about and I will for sure understand everything she tells me about her life. She is so special to me. She won't be duplicated or ever replaced in my heart.
I love her red hair. I love it straight. I love it curly.
I love her stories and the funny things that happen to her.
I adore her giggle (I'm jealous) and her genuine smile.
I love her listening ear and her observant qualities-I love to talk "later" and find out she observed the same thing I did.
I love that she is laid back, fashionable/trendy, appropriate (for so many reasons), a dancer, a reader, a writer, a hard worker, a full time working mom, and an understanding friend.
This first friend.
This trendy friend.
This hilarious friend.
This-always-there-for-a good -vent friend.
She's more than a friend; she's a gal, a sister, a cousin, a daughter, a doctor, a bridesmaid (oh and a beautiful bride), a wife, and a mother (and many other things).
This friend of mine is amazing. Although we have never lived in the same state since we were 3 years old, we have bucket loads of memories. I can't list them all but I can tell you that
-we have laughed as if we were out of control as our feet were stuck in the mud while shoving pop rocks in our mouth
-she let me go to school with her for a full day in 8th grade
-we bought our pens after looking (and laughing) at them year after year
-we traveled to New Mexico together, enjoyed blue speckled cups, chased the icecream truck barefoot, and scavenged through a freezer
-we wrote long letters to each other monthly through the years that we both lived at home
-we stood up in each others weddings, helped with showers and enjoyed each other's bachelorette parties
-we share stories of being moms of little boys
-we've been left at bars
-we've gotten stuck in paddle boats in the middle of a lake
-we read the same books
and the list goes on and on.....
When Eli was nearing 1 year old, I got an e-mail from her that made me feel so good. She told me that it is normal for people who have gone through something traumatic or emotional to feel that same way 1 year later and that it was ok for me to have some of those same emotions. In the last year I have found her to be one of the people in my life that can say the right thing at every important and intense moment. When I see an email pop up from her I know I will be validated for any concerns I had written to her about and I will for sure understand everything she tells me about her life. She is so special to me. She won't be duplicated or ever replaced in my heart.
I love her stories and the funny things that happen to her.
I adore her giggle (I'm jealous) and her genuine smile.
I love her listening ear and her observant qualities-I love to talk "later" and find out she observed the same thing I did.
I love that she is laid back, fashionable/trendy, appropriate (for so many reasons), a dancer, a reader, a writer, a hard worker, a full time working mom, and an understanding friend.
Thanks for the OH SO thoughtful gift....Love ya Colleen!
 |
| This is "the" giggle we all know and love! |
Friday, January 14, 2011
New link
I have a link (see box) on the side of my blog for anyone who wants to read about being gluten free. Many may get bored about this "stuff" so I wanted to separate the info. That doesn't mean I won't occasionally still post how things are going on here....but click over if you're interested! Check out my first post-it shows how much gluten is tolerable-amazing.
love, Raina
love, Raina
Thursday, January 13, 2011
Wednesday, January 12, 2011
Poor Poor Pity Post
I'm new to the gluten free diet so this is my pity post. I don't need you to feel sorry for me. I am not feeling sorry for me.
To my some of my old favorite foods I'm saying:
Good bye!
You've been good to me!
I love you!
You are so awesome....I wish we were still close.
I will miss you.
I might cry over you.
I might drool over you.
I will try hard to find a replacement for you.
You'll never be forgotten.
You're the best....even if you were a food I only ate 1 time a year.
Some of these foods are considered favorites and indulgences-meaning I ate them at social gatherings, out for birthdays, on rainy/snowy-stay-at-home nights or over the holidays. Some are things that I ate more frequently. After making this list I realized most of these foods are not that healthy. So it may be ok to let go of them.
I do know that most of the foods on the list have a gluten-free option. (I KNOW THIS!) And if it doesn't now, it soon will. I have been reminded that gluten free bread, pizza crust and muffins are doable. I have also been given ideas to do lettuce wraps and corn tortillas for enchiladas etc. I appreciate all these (continued) suggestions. But still, in my heart, in my mouth, on my tongue....from my taste buds to yours--these gluten free options will NEVER taste the same (although I know I will get over it). And because this is not a personal choice, I feel it necessary to give them a formal good-bye. They deserve it. I deserve it.
No more....
Pretzels
Bread, wheat, pita bread, sub bread, crusty bread, hogie buns
Garlic bread
LIFE cereal
Homemade Rice Krispy Bars
Homemade Chex Party Mix (evidentally some worchestershire sauce is questionable and I'd need gf pretzels and no wheat chex!)
Grandma Schneider Skinny pancakes
Aunt Ellie's Fancy fast chicken
Aunt Virginia's Stuffing casserole
My mom's lasagna
stuffing on thanksgiving
My mother in law's pizza crust
quiche (crust :( )
All Pizza
Cheese-it's
Fishy crackers (only because I like to share with Eli, I don't really like these!)
Breadsticks
White cupcakes-my all time favorite birthday treat
Frozen eggo waffles
wraps
A "burger" (The bun is not allowed)
A "hot dog" at the game (bun not allowed)
Egg salad sandwich-oooh I love you on bread but can still enjoy you on a cracker or gf bread
Corned beef sandwich on rye
A hot pretzel (at the game)
A white (non-filled) long john
Bagel-goodbye bagel sandwiches
English muffin
Fish fry-hello baked fish
Taco seasoning
Stir fry sauces
Crackers-of all shapes and forms
Gravy/sauces
Soups from restaurants
Salad dressings
Pesto over pasta
Spaghetti (I have always made this at least 1 x week)
Party potatoes (goodbye crunchy top)
Chicken alfredo
Mrs grass soup
Crackers or noodles with my chili
Chocolate chip cookie/oreos and ALL Christmas cookies
Oreo cookies mixed in my icecream
twix bars and kit kats
ahhh macaroni and cheese
Red Licorice
any type of club sandwich on toast
Quesadillas
Cheetos (only at the cottage)
French fries at restaurants (unless they have a fryer for just that)
soy sauce and teryiaki
Miller lite
Andy's laughing at me. Sorry Sarah-but I will miss egg salad on GOOD bread! It's on the list. Bear with me. I may be self-absorbed right now as we wait for Eli's blood test results to return. I'm on edge. But I'm gluten free!!!
Oh and just for all you optimists who are annoyed with me & my list: HELLO quinoa, rice pasta, gluten free Udi's bread, fruits, vegetables, yoplait yogurt, home-made baked gf bread and pizza crust, jose's chips and salsa, m&m's, rice and potatoes.
Soon I will be adding a link to my blog where I can blog for myself (for myself...ahhh) to my hearts content about being gluten free and having Celiac's disease. Then I won't bore you with post after post about what's going on in that 1 area of my/our lives.
I hope there was at least 1 food on that list that you tipped your head and were able to agree "yes, I would want to say goodbye to you too". Did I miss anything?
To my some of my old favorite foods I'm saying:
Good bye!
You've been good to me!
I love you!
You are so awesome....I wish we were still close.
I will miss you.
I might cry over you.
I might drool over you.
I will try hard to find a replacement for you.
You'll never be forgotten.
You're the best....even if you were a food I only ate 1 time a year.
Some of these foods are considered favorites and indulgences-meaning I ate them at social gatherings, out for birthdays, on rainy/snowy-stay-at-home nights or over the holidays. Some are things that I ate more frequently. After making this list I realized most of these foods are not that healthy. So it may be ok to let go of them.
I do know that most of the foods on the list have a gluten-free option. (I KNOW THIS!) And if it doesn't now, it soon will. I have been reminded that gluten free bread, pizza crust and muffins are doable. I have also been given ideas to do lettuce wraps and corn tortillas for enchiladas etc. I appreciate all these (continued) suggestions. But still, in my heart, in my mouth, on my tongue....from my taste buds to yours--these gluten free options will NEVER taste the same (although I know I will get over it). And because this is not a personal choice, I feel it necessary to give them a formal good-bye. They deserve it. I deserve it.
No more....
Pretzels
Bread, wheat, pita bread, sub bread, crusty bread, hogie buns
Garlic bread
LIFE cereal
Homemade Rice Krispy Bars
Homemade Chex Party Mix (evidentally some worchestershire sauce is questionable and I'd need gf pretzels and no wheat chex!)
Grandma Schneider Skinny pancakes
Aunt Ellie's Fancy fast chicken
Aunt Virginia's Stuffing casserole
My mom's lasagna
stuffing on thanksgiving
My mother in law's pizza crust
quiche (crust :( )
All Pizza
Cheese-it's
Fishy crackers (only because I like to share with Eli, I don't really like these!)
Breadsticks
White cupcakes-my all time favorite birthday treat
Frozen eggo waffles
wraps
A "burger" (The bun is not allowed)
A "hot dog" at the game (bun not allowed)
Egg salad sandwich-oooh I love you on bread but can still enjoy you on a cracker or gf bread
Corned beef sandwich on rye
A hot pretzel (at the game)
A white (non-filled) long john
Bagel-goodbye bagel sandwiches
English muffin
Fish fry-hello baked fish
Taco seasoning
Stir fry sauces
Crackers-of all shapes and forms
Gravy/sauces
Soups from restaurants
Salad dressings
Pesto over pasta
Spaghetti (I have always made this at least 1 x week)
Party potatoes (goodbye crunchy top)
Chicken alfredo
Mrs grass soup
Crackers or noodles with my chili
Chocolate chip cookie/oreos and ALL Christmas cookies
Oreo cookies mixed in my icecream
twix bars and kit kats
ahhh macaroni and cheese
Red Licorice
any type of club sandwich on toast
Quesadillas
Cheetos (only at the cottage)
French fries at restaurants (unless they have a fryer for just that)
soy sauce and teryiaki
Miller lite
Andy's laughing at me. Sorry Sarah-but I will miss egg salad on GOOD bread! It's on the list. Bear with me. I may be self-absorbed right now as we wait for Eli's blood test results to return. I'm on edge. But I'm gluten free!!!
Oh and just for all you optimists who are annoyed with me & my list: HELLO quinoa, rice pasta, gluten free Udi's bread, fruits, vegetables, yoplait yogurt, home-made baked gf bread and pizza crust, jose's chips and salsa, m&m's, rice and potatoes.
Soon I will be adding a link to my blog where I can blog for myself (for myself...ahhh) to my hearts content about being gluten free and having Celiac's disease. Then I won't bore you with post after post about what's going on in that 1 area of my/our lives.
I hope there was at least 1 food on that list that you tipped your head and were able to agree "yes, I would want to say goodbye to you too". Did I miss anything?
 |
| See the little pink thing between the 2 left slots? |
 |
| That's MY side! |
Tuesday, January 11, 2011
Grace in the small things...and some thoughts
1. The snow today was pretty. The roads were not bad. So far the winter has been very mild. My office does not have windows, but the routes that I walk all day are surrounded by hundreds of windows where I can glance, stare, gaze or dream through. Today it was gorgeous to see the white, swirly snow.
2. A good doc is hard to come by. I know I have proclaimed this before. I have been lucky to work with a whole big bunch of good ones. My new doctor emailed me last night at 10 pm! I woke up to have my questions answered in such a timely manner (I had emailed him at 7 pm). He treats me with respect, dignity and makes me feel like my little issues are the most important part of his day. Bottom line-if you don't feel this way about your doctor-seek one out that makes you feel safe and important and whom you trust.
3. A new baby is coming into my life soon...very soon? I'm OHHHHHHHHH so excited. Go Sarah Go! Go Ed Go! The thought of boy/girl/boy/girl shoots through my mind hour to hour and helps me through my day. I can't wait to meet this little bundle of joy. I love to hear my sisters daily thoughts about her 2 boys, what this next child will bring, the fears, anxieties, anticipations and love for this new special child. I hope labor is quick and painless Sarah!
4. Tomorrow will be my first full gluten free day. I have been doing breakfast and lunch gluten free the last few days but tomorrow is the beginning of the end ;) I know all you optimists can't wait for my pity party post to come out....it's on it's way soon. Basically I want to just list all the foods I will miss, and those I am most excited about. I promise to update those who asked on how I feel after a few days of full/strict diet.
5. On that same note: support, support, support. I have a ton of support seeping in all over the place. It's a wonderful pick me up. My mom has been ever so sensitive and caring to listen to me. My sister says the right things at all the right times. My brother asked a bunch of questions about my procedure that let me talk about it (therapeutic for me). My friend PW called a local Mexican joint to ask if the chips and salsa are gluten free (YES IT IS!!!). My friend CF left me a VERY VERY special and nice comment on a previous blog post. My husband practiced reading labels last night and that left a smile on my face. He also cleaned out the toaster and my "side" is labeled with a pink R sticker. A co-worker of mine left me a little surprise of a bag of gluten free breadcrumbs on my desk at work. My aunt lit a candle at church for me a few weeks ago. A few bookclub friends have emailed and sent me words of support. And my meal group has convinced me to maintain membership!
6. Eli is now trying to say so many words. He even attempts thank you and knows how to do the sign language for it even though I didn't teach him. I am grateful to find out he is learning things here and there at day care without my motherly push. Another cute Eli-ism: he now is putting a few words together. After nap we ask him to leave Teddy in his crib. Eli then said "Bye-Bye Teddy". We got over excited and congratulatory with him and now when he says bye bye-he says "bye bye teddy" no matter who he is talking to.
7. Bailee (woof) continues to sleep on the floor for 98% of the night and I love her for it. I miss her cuddle but I do believe it's helping us get a little more rest at night.
8. I have an intern with me at work which is tough. I feel as though being in teaching mode makes my day drag a little slower as I'm talking not only to patients but then after each appointment I then explain, ask, go over details with her. It's hard for me to get everything done and even check my email. I have been missing corresponding with my usual email buds. She is very nice and despite everything taking a little longer, it has been a blessing to have someone there to keep my mind off "things" and stay focused on work.
9. There is more to be thankful for...like a husband who always offers to shovel and is supportive to me in every which way is possible. A good book. A hot bath. A glass of wine. Fresh sheets on the bed. Popcorn. and more and more and more.............
2. A good doc is hard to come by. I know I have proclaimed this before. I have been lucky to work with a whole big bunch of good ones. My new doctor emailed me last night at 10 pm! I woke up to have my questions answered in such a timely manner (I had emailed him at 7 pm). He treats me with respect, dignity and makes me feel like my little issues are the most important part of his day. Bottom line-if you don't feel this way about your doctor-seek one out that makes you feel safe and important and whom you trust.
3. A new baby is coming into my life soon...very soon? I'm OHHHHHHHHH so excited. Go Sarah Go! Go Ed Go! The thought of boy/girl/boy/girl shoots through my mind hour to hour and helps me through my day. I can't wait to meet this little bundle of joy. I love to hear my sisters daily thoughts about her 2 boys, what this next child will bring, the fears, anxieties, anticipations and love for this new special child. I hope labor is quick and painless Sarah!
4. Tomorrow will be my first full gluten free day. I have been doing breakfast and lunch gluten free the last few days but tomorrow is the beginning of the end ;) I know all you optimists can't wait for my pity party post to come out....it's on it's way soon. Basically I want to just list all the foods I will miss, and those I am most excited about. I promise to update those who asked on how I feel after a few days of full/strict diet.
5. On that same note: support, support, support. I have a ton of support seeping in all over the place. It's a wonderful pick me up. My mom has been ever so sensitive and caring to listen to me. My sister says the right things at all the right times. My brother asked a bunch of questions about my procedure that let me talk about it (therapeutic for me). My friend PW called a local Mexican joint to ask if the chips and salsa are gluten free (YES IT IS!!!). My friend CF left me a VERY VERY special and nice comment on a previous blog post. My husband practiced reading labels last night and that left a smile on my face. He also cleaned out the toaster and my "side" is labeled with a pink R sticker. A co-worker of mine left me a little surprise of a bag of gluten free breadcrumbs on my desk at work. My aunt lit a candle at church for me a few weeks ago. A few bookclub friends have emailed and sent me words of support. And my meal group has convinced me to maintain membership!
6. Eli is now trying to say so many words. He even attempts thank you and knows how to do the sign language for it even though I didn't teach him. I am grateful to find out he is learning things here and there at day care without my motherly push. Another cute Eli-ism: he now is putting a few words together. After nap we ask him to leave Teddy in his crib. Eli then said "Bye-Bye Teddy". We got over excited and congratulatory with him and now when he says bye bye-he says "bye bye teddy" no matter who he is talking to.
7. Bailee (woof) continues to sleep on the floor for 98% of the night and I love her for it. I miss her cuddle but I do believe it's helping us get a little more rest at night.
8. I have an intern with me at work which is tough. I feel as though being in teaching mode makes my day drag a little slower as I'm talking not only to patients but then after each appointment I then explain, ask, go over details with her. It's hard for me to get everything done and even check my email. I have been missing corresponding with my usual email buds. She is very nice and despite everything taking a little longer, it has been a blessing to have someone there to keep my mind off "things" and stay focused on work.
9. There is more to be thankful for...like a husband who always offers to shovel and is supportive to me in every which way is possible. A good book. A hot bath. A glass of wine. Fresh sheets on the bed. Popcorn. and more and more and more.............
Saturday, January 8, 2011
Me
Some of you may know I have had a couple of extra doctor appointments recently. It's time I post an update on me.
Let's clear up 1 thing right away. No I'm not pregnant. Hopefully someday that will be the case, but not right now.
Although I'm not quite ready to even really admit or accept everything that has happened in the last few weeks, I feel as if my blog is therapy for me and also a way to communicate. I don't expect that from the words I type and share will make any sense for anyone else. I can only imagine people reading what I write and some may tip his/her head while they read, others may widen their eyes, or furrow their brows. Some could roll their eyes or click off the post if it annoys them-as to some it may not be a big deal or matter at all. To Andy, Elijah and I it is a big life long change.
I had some blood work done, a genetic test and an EGD (endoscopy). Since I have received those results I have had a hard time admitting that I actually have a diagnosis. I have a difficult time actually SAYING the words. Andy and friends and family are helping me to remind me "Yes Raina, you have it.". I think it may be a defense mechanism....I giggle and say "but what if I don't?" I'm usually a pessimist so you'd think the moment I got the lab work back I would have assumed I had it. But before the genetic test and the EGD I was 95% sure I didn't have it.
What is it you ask?
Here it is.
I have Celiac's Disease.
I
Have
Celiac's
Disease.
If you don't know what it is-here is a brief description: Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in everyday products such as medicines, vitamins, and lip balms. When people with celiac disease eat foods or use products containing gluten, their immune system responds by damaging or destroying villi—the tiny, fingerlike protrusions lining the small intestine. Villi normally allow nutrients from food to be absorbed through the walls of the small intestine into the bloodstream. Without healthy villi, a person becomes malnourished, no matter how much food one eats.
In the last 4 days I have told many people. And I get mixed responses. Most people just list the foods I can still eat. Others respond by telling me it's perfect that I'm a dietitian-my own best resource. I can't really define how I've been feeling about it except a lot of denial, a lot of questions, fear and a little anger. Oh yeah and a whole HUGE amount of disbelief. Andy is helping a ton as well as family and close friends. Because my genetic test came back positive-Elijah now has to be tested and it is also recommended that my parents and siblings get tested. They may carry the gene (making them 10 times more likely to get celiac's disease) or not.
Many are asking if this could have had anything to do with Elijah and what happened when he was born. We don't know yet-but we are going to be active to try to find out! My GI specialist is doing some research for me and has already said he has found some mixed research. Because I carry the gene-I just needed something to "trigger" it. Many websites list triggers such as surgery, emotional trauma, virus, labor or pregnancy. Andy and I believe I may have been triggered during pregnancy and this is why Eli had a few health issues when he is born. If this is the case, it will be a blessing in disguise when/if we decide to have another baby-as my intestines can heal and provide better nutrition for our baby.
So...as everyone that knows me really well knows that my favorite comfort food of buttered noodles are now out of the question. Trust me-I will blog about this over and over again in the next few weeks (I'm sure). I know there is a "pity party" post coming soon. I feel I have the RIGHT to list all the foods I will miss. Even if there is a gluten free version of the food-it won't taste as good or the same to me. Food is a major part of my life as I talk about it with people 8-10 hours of my day as well as plan out my meals and live for my next meal/snack. I told my sister instead of emailing about meals and upcoming social menus....I should focus on something else. Maybe fashion? Ha! I need to get "involved" in something else.
I know I will adapt. I know I will be fine. I won't die-it's a disease that is totally in my own control. But it's not fun. I don't like to eat eggs without toast. I love cold cereal. I enjoy pasta dishes. I like to use sauces and salad dressings. I LOVE soup etc. I'm a social eater-I enjoy going to restaurants and eating with friends and I'm nervous that it might change.
But I'm attempting to look on the bright side. It may help with various "things" with my body that I will be happy with.
I try to explain it to Andy ( an athlete and sports lover). I tell him he cannot (Forever and ever, for the rest of his life) watch Basketball or football on tv or live games. No NFL, no college ball, no high school or even if Eli plays. He can watch soccer, swimming and horse races. But those are the only sports he can watch. If he wants ANYTHING to do with football or basketball-he is only allowed to watch people play video game versions of those sports. I think that was a good comparison.
Tonight Elijah, Andy and I made our first trip to a grocery store other than where we usually shop. Eli shouted "Thomas!! Thomas!!" the whole time. I tried to label read. Andy walked along. There were a LOT of people at this store. We left the store with a few (new) items and put them on "my shelf". Tomorrow we will clean out the 2 slots on the right side of the toaster for me (andy will use the left side) and I will get my own peanut butter, mayo, jelly and butter as cross contamination can also be a problem-therefore he can't dip his used knife into the same item I will use. Andy and I have a lot of reading to do. A lot of learning to do.
I will survive. I can control this disease. That's the perfect kind of disease for me.
Let's clear up 1 thing right away. No I'm not pregnant. Hopefully someday that will be the case, but not right now.
Although I'm not quite ready to even really admit or accept everything that has happened in the last few weeks, I feel as if my blog is therapy for me and also a way to communicate. I don't expect that from the words I type and share will make any sense for anyone else. I can only imagine people reading what I write and some may tip his/her head while they read, others may widen their eyes, or furrow their brows. Some could roll their eyes or click off the post if it annoys them-as to some it may not be a big deal or matter at all. To Andy, Elijah and I it is a big life long change.
I had some blood work done, a genetic test and an EGD (endoscopy). Since I have received those results I have had a hard time admitting that I actually have a diagnosis. I have a difficult time actually SAYING the words. Andy and friends and family are helping me to remind me "Yes Raina, you have it.". I think it may be a defense mechanism....I giggle and say "but what if I don't?" I'm usually a pessimist so you'd think the moment I got the lab work back I would have assumed I had it. But before the genetic test and the EGD I was 95% sure I didn't have it.
What is it you ask?
Here it is.
I have Celiac's Disease.
I
Have
Celiac's
Disease.
If you don't know what it is-here is a brief description: Celiac disease is a digestive disease that damages the small intestine and interferes with absorption of nutrients from food. People who have celiac disease cannot tolerate gluten, a protein in wheat, rye, and barley. Gluten is found mainly in foods but may also be found in everyday products such as medicines, vitamins, and lip balms. When people with celiac disease eat foods or use products containing gluten, their immune system responds by damaging or destroying villi—the tiny, fingerlike protrusions lining the small intestine. Villi normally allow nutrients from food to be absorbed through the walls of the small intestine into the bloodstream. Without healthy villi, a person becomes malnourished, no matter how much food one eats.
In the last 4 days I have told many people. And I get mixed responses. Most people just list the foods I can still eat. Others respond by telling me it's perfect that I'm a dietitian-my own best resource. I can't really define how I've been feeling about it except a lot of denial, a lot of questions, fear and a little anger. Oh yeah and a whole HUGE amount of disbelief. Andy is helping a ton as well as family and close friends. Because my genetic test came back positive-Elijah now has to be tested and it is also recommended that my parents and siblings get tested. They may carry the gene (making them 10 times more likely to get celiac's disease) or not.
Many are asking if this could have had anything to do with Elijah and what happened when he was born. We don't know yet-but we are going to be active to try to find out! My GI specialist is doing some research for me and has already said he has found some mixed research. Because I carry the gene-I just needed something to "trigger" it. Many websites list triggers such as surgery, emotional trauma, virus, labor or pregnancy. Andy and I believe I may have been triggered during pregnancy and this is why Eli had a few health issues when he is born. If this is the case, it will be a blessing in disguise when/if we decide to have another baby-as my intestines can heal and provide better nutrition for our baby.
So...as everyone that knows me really well knows that my favorite comfort food of buttered noodles are now out of the question. Trust me-I will blog about this over and over again in the next few weeks (I'm sure). I know there is a "pity party" post coming soon. I feel I have the RIGHT to list all the foods I will miss. Even if there is a gluten free version of the food-it won't taste as good or the same to me. Food is a major part of my life as I talk about it with people 8-10 hours of my day as well as plan out my meals and live for my next meal/snack. I told my sister instead of emailing about meals and upcoming social menus....I should focus on something else. Maybe fashion? Ha! I need to get "involved" in something else.
I know I will adapt. I know I will be fine. I won't die-it's a disease that is totally in my own control. But it's not fun. I don't like to eat eggs without toast. I love cold cereal. I enjoy pasta dishes. I like to use sauces and salad dressings. I LOVE soup etc. I'm a social eater-I enjoy going to restaurants and eating with friends and I'm nervous that it might change.
But I'm attempting to look on the bright side. It may help with various "things" with my body that I will be happy with.
I try to explain it to Andy ( an athlete and sports lover). I tell him he cannot (Forever and ever, for the rest of his life) watch Basketball or football on tv or live games. No NFL, no college ball, no high school or even if Eli plays. He can watch soccer, swimming and horse races. But those are the only sports he can watch. If he wants ANYTHING to do with football or basketball-he is only allowed to watch people play video game versions of those sports. I think that was a good comparison.
Tonight Elijah, Andy and I made our first trip to a grocery store other than where we usually shop. Eli shouted "Thomas!! Thomas!!" the whole time. I tried to label read. Andy walked along. There were a LOT of people at this store. We left the store with a few (new) items and put them on "my shelf". Tomorrow we will clean out the 2 slots on the right side of the toaster for me (andy will use the left side) and I will get my own peanut butter, mayo, jelly and butter as cross contamination can also be a problem-therefore he can't dip his used knife into the same item I will use. Andy and I have a lot of reading to do. A lot of learning to do.
I will survive. I can control this disease. That's the perfect kind of disease for me.
Zooooom into boyhood
Today Elijah had his first haircut! It really was just a trim. Just a little snip in the back and around the ears. Of course I was prepared for him to look less like a baby and more like a man. But I wasn't expected for it to go so fast! Half way through the "cut" I realized I hadn't even asked if we could save some. She had already started collecting! Eli sat in his little blue car and mostly frowned and wiggled. He didn't really cry but he seemed confused that something was touching the back of his head. He kept turning around when the "buzzer" or "vacuum" started behind him. I took some before and after shots. He doesn't have enough on top or in the front-so it truly was just a trim around the ears and in the back.
 |
| Before...a view of Eli in the mirror |
 |
| see those long wisps in the back? |
 |
| and the wisps around his ear.....about to disappear! |
 |
| He mostly frowned the whole time...But holds his beloved "Thomas" in his hands! |
 |
| After! |
 |
| I LOVE love love love love this handsome little BOY! |
Blessing
A blessing is when your child sleeps.
Don't get me wrong-I love all the lay-on-the-floor play, the chasing, the kid songs and character voices. I cherish moments when he tries the sit and spin, learns new words, draws with crayons or asks for a snack. I know I am blessed for all of this.
But when he sleeps....I am also blessed.
Eli was not a great sleeper in his 1st year of life. His naps were never over an hour and he nursed until he was 9 months+ so he never slept longer than 2- 3 hour chunks. My sister often would remind me as I trudged through my 8-10 hour work day that he would not sleep so poorly for his whole life. That lack of sleep I was experiencing was only a "small part of his long long life". That was one of the only things that really helped me-was to know that he wouldn't be a poor sleeper until he was 18. By the time he was 8 I expected him to be sleeping 8 hour chunks. I COULD survive until he was 8-I could if I had to. Luckily I didn't have to wait until he was 18 or 8. He is 18 months old. He sleeps 12-13 hours at night (wowowow!) and takes 1 nap that is anywhere from 2-3 hours long.
The best part is that he GOES to sleep well. Our routine holds us all together and I love it. I cherish it. It is one of the many favorite moments of my day. I love to click off the bed side lamp after reading books and just rock with him in my lap. Those 5 minutes of rocking I get to experience a silent and tranquil Eli. He doesn't squirm. He doesn't try to talk or play. He sits on my laps and rubs his Teddy by his ear and rocks with me. Usually I talk quietly to him-telling him all the amazing things he did that day, how special he is to me and what excitement is to come the next day. After this I turn him around, give him a hug and a kiss (or 10) and lay him down. He doesn't usually make a peep after that.
That's the blessing. Andy and I are no longer looking at each other in disbelief-wondering what the heck is going on up there or if he needs his nuk, or is he's cold, bored, not tired, sick, teething, pooping etc etc etc.
I am recording this, blogging this, sharing this-so that I can look back someday. Hopefully we'll have a #2 (although currently there is NO #2-I'm not lying Jessica!) and I will need to remind myself that it ends-it stops-they are quiet-they sleep.
And it never fails- that's when the missing-him starts.
Good luck Sarah-the next few months may be sleepless for you. I will try to remind you that it won't last forever! Hope you get a GREAT sleeper.
Don't get me wrong-I love all the lay-on-the-floor play, the chasing, the kid songs and character voices. I cherish moments when he tries the sit and spin, learns new words, draws with crayons or asks for a snack. I know I am blessed for all of this.
But when he sleeps....I am also blessed.
Eli was not a great sleeper in his 1st year of life. His naps were never over an hour and he nursed until he was 9 months+ so he never slept longer than 2- 3 hour chunks. My sister often would remind me as I trudged through my 8-10 hour work day that he would not sleep so poorly for his whole life. That lack of sleep I was experiencing was only a "small part of his long long life". That was one of the only things that really helped me-was to know that he wouldn't be a poor sleeper until he was 18. By the time he was 8 I expected him to be sleeping 8 hour chunks. I COULD survive until he was 8-I could if I had to. Luckily I didn't have to wait until he was 18 or 8. He is 18 months old. He sleeps 12-13 hours at night (wowowow!) and takes 1 nap that is anywhere from 2-3 hours long.
The best part is that he GOES to sleep well. Our routine holds us all together and I love it. I cherish it. It is one of the many favorite moments of my day. I love to click off the bed side lamp after reading books and just rock with him in my lap. Those 5 minutes of rocking I get to experience a silent and tranquil Eli. He doesn't squirm. He doesn't try to talk or play. He sits on my laps and rubs his Teddy by his ear and rocks with me. Usually I talk quietly to him-telling him all the amazing things he did that day, how special he is to me and what excitement is to come the next day. After this I turn him around, give him a hug and a kiss (or 10) and lay him down. He doesn't usually make a peep after that.
That's the blessing. Andy and I are no longer looking at each other in disbelief-wondering what the heck is going on up there or if he needs his nuk, or is he's cold, bored, not tired, sick, teething, pooping etc etc etc.
I am recording this, blogging this, sharing this-so that I can look back someday. Hopefully we'll have a #2 (although currently there is NO #2-I'm not lying Jessica!) and I will need to remind myself that it ends-it stops-they are quiet-they sleep.
And it never fails- that's when the missing-him starts.
Good luck Sarah-the next few months may be sleepless for you. I will try to remind you that it won't last forever! Hope you get a GREAT sleeper.
Wednesday, January 5, 2011
He talks!
Eli has been talking for a while but as of 2-3 days ago he has started repeating everything we say. Some words are clear as a bell and some are just attempts.
Take note-when he says "momma" and "daddy" his voice changes. You can tell in his heart that he is just warmer and sincere with love when he says our names. (Or that's what I keep telling myself!).
Take note-when he says "momma" and "daddy" his voice changes. You can tell in his heart that he is just warmer and sincere with love when he says our names. (Or that's what I keep telling myself!).
Sunday, January 2, 2011
18 Months
Hey you!
It's me....1 1/2 year old Elijah. I'm doing well-thanks for wondering. Mommy hasn't let me on her blog for a while because she thinks I'm getting a little sassy these days. I'm 18 months old and getting smarter each and every day. I had a chance to visit with Dr. B last week. He said I checked out well! I'm developing just as I should. AND!! a big AND--I'm growing well too. I finally hit the 20 lb mark (actually 21 lbs 3 oz) and now my mom and dad can turn my car seat around. I'm still less than the 3rd%ile but I gained 2 lbs in the last 3 months. I'm 32.5 inches tall and that puts me around the 50%ile. My head measures me into the 25-50%ile. I didn't have to get any shots because I had an ear infection and a fever so Dr. B "let it slide".
I'm super busy these days. I really don't like to sit still at all. I'm on the move running and hopping and trotting everywhere. I like to climb, in and out, over and under. I'm into "nack" (snack) and Thomas the Train.
I love to help mom and dad put blocks away, throw out the garbage and sit on top of Bailee. I'm only taking 1 nap a day and I still sleep almost 12 hours every night. Here are my fun facts:
-When dad watches football I like to stand in front of the tv and move my fist like him. I yell "Go, Go, Go" and "ootball"
-I am trying to say a lot of words. My favorite right now is "Thon-ih" (thomas the train), Elmo, Bye Bye, Momma, Teddy, Dog, Bath, Boots, Snack (nack), Book, night night etc
-I try to climb on the couch because I am such a big boy when I sit on it. Then I like to sit as close to Bailee as possible. Sometimes she even lets me sit on top of her.
-I hear talk of mom and dad taking away my Nuk. I'm nervous. It's a soother to me.
-I got a new tool bench for Christmas. I love it-it's perfect for me.
-My favorite foods are peas, strawberries, cheese and tomatoes
-I love my bath, bubbles and new tub toys!
-My all time favorite book right now is the foot book. Both mom and dad can almost recite it by memory because we have read it so many times. I also love books that have things for me to touch or move. I only sit on laps for books before bed. But often I will sit on the floor and look at books by myself.
-I love the big mega blocks and spongy blocks.
-I got a broom and a lawn mower for Christmas. I also got a zhu-zhu pet. I love to chase it and I giggle when I pick it up.
-My platelet count (270,000) and other labs looked great at the last draw!
I have enjoyed the little snow that we've had but I can't wait for this summer when I can go outside and play in the backyard again. That's all for now. I'm also attaching a few pictures of me.
Love you all,
Mr. Elijah (bubs, E-casey, E-bugs, Eli)
It's me....1 1/2 year old Elijah. I'm doing well-thanks for wondering. Mommy hasn't let me on her blog for a while because she thinks I'm getting a little sassy these days. I'm 18 months old and getting smarter each and every day. I had a chance to visit with Dr. B last week. He said I checked out well! I'm developing just as I should. AND!! a big AND--I'm growing well too. I finally hit the 20 lb mark (actually 21 lbs 3 oz) and now my mom and dad can turn my car seat around. I'm still less than the 3rd%ile but I gained 2 lbs in the last 3 months. I'm 32.5 inches tall and that puts me around the 50%ile. My head measures me into the 25-50%ile. I didn't have to get any shots because I had an ear infection and a fever so Dr. B "let it slide".
I'm super busy these days. I really don't like to sit still at all. I'm on the move running and hopping and trotting everywhere. I like to climb, in and out, over and under. I'm into "nack" (snack) and Thomas the Train.
I love to help mom and dad put blocks away, throw out the garbage and sit on top of Bailee. I'm only taking 1 nap a day and I still sleep almost 12 hours every night. Here are my fun facts:
-When dad watches football I like to stand in front of the tv and move my fist like him. I yell "Go, Go, Go" and "ootball"
-I am trying to say a lot of words. My favorite right now is "Thon-ih" (thomas the train), Elmo, Bye Bye, Momma, Teddy, Dog, Bath, Boots, Snack (nack), Book, night night etc
-I try to climb on the couch because I am such a big boy when I sit on it. Then I like to sit as close to Bailee as possible. Sometimes she even lets me sit on top of her.
-I hear talk of mom and dad taking away my Nuk. I'm nervous. It's a soother to me.
-I got a new tool bench for Christmas. I love it-it's perfect for me.
-My favorite foods are peas, strawberries, cheese and tomatoes
-I love my bath, bubbles and new tub toys!
-My all time favorite book right now is the foot book. Both mom and dad can almost recite it by memory because we have read it so many times. I also love books that have things for me to touch or move. I only sit on laps for books before bed. But often I will sit on the floor and look at books by myself.
-I love the big mega blocks and spongy blocks.
-I got a broom and a lawn mower for Christmas. I also got a zhu-zhu pet. I love to chase it and I giggle when I pick it up.
-My platelet count (270,000) and other labs looked great at the last draw!
I have enjoyed the little snow that we've had but I can't wait for this summer when I can go outside and play in the backyard again. That's all for now. I'm also attaching a few pictures of me.
Love you all,
Mr. Elijah (bubs, E-casey, E-bugs, Eli)
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